Niemann-Pick Childrens Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in America; to raise money to promote research to help find treatments or a cure for Niemann-Pick Disease Type C: and to provide support to individuals and families affected by this disease through existing channels.
Niemann-Pick Type C Disease (NPC) simply put is FATAL.
for Niemann-Pick Children’s Fund
It is a genetic, neurodegenerative disorder that consequently accumulates large amounts of cholesterol and other excess fats in the cells of the liver, spleen, and brain causing progressive deterioration of the nervous system. It usually starts to affect children of school age (4-7 years old) by interfering with their ability to metabolize cholesterol. Adult onset may also occur.